For world Autism Awareness Week ourselves along with a few other businesses put together a online event and raised £400 which was split between the National Autistic Society and a local parent support group called Spectrum and Me. These are the information posts and videos/live videos that were shared, thank you to everyone that participated and shared stories and information. We hope to continue sharing even though the awareness week/day/month is over.
Our Autism Story
Some information about the National Autistic Society where half the money raised at this event will go to.
Nikken, Our Life & Autism
Apologies for the length but still recovering from our lack of sleep from when Tyler was in hospital (he had a seizure and took a while to recover he has since had another episode and been diagnosed with epilepsy, it was scary) and we are still keeping an eye on him during the night and our little girl now had a cold, its what happens when we don’t drink enough water and take our supplements.. We get sick!!
Fantastic Ted Talk by Rosie King ❤️
“People are so afraid of variety that they try to fit everything into a tiny little box with a specific label,” says 16-year-old Rosie King, who is bold, brash and autistic. She wants to know: Why is everyone so worried about being normal? She sounds a clarion call for every kid, parent, teacher and person to celebrate uniqueness. It’s a soaring testament to the potential of human diversity.
Tyler said a new word yesterday… Sausage! He loves sausages and we got some gluten free ones they weren’t the greatest but bless him he ate them anyway.
Yesterday i told you our story of how being part of Nikken and using advanced magnetic technology had helped Tyler, there are alot of things that we have done over the past year that have helped but his bedding, water and nutrition have played a big part. Today i will be explaing more about what they are and i will post the videos that i mentioned in my live video yesterday. Below is a blog post i shared last year. Any questions please do get in touch. Have the best day! I hope the weather is great wherever you are!
Here is a video of Mike and Tyler showing you Tylers bedding, you can see how he likes to jump and crash.
The magnets create an environment how nature intends it to be, the earth has a magnetic field however with all the pollution etc its been damaged. The far infrared is from the sun and negative ions are from places like the beach and out in the countryside, near waterfalls its the reason you feel good when you’re in those places so with the sleep system you are surrounded by these amazing technologies that help balance your body, heal/recover faster, pain relief, regulate temperature and get the bests nights sleep. If you see how Tyler is in the video at bedtime that got worse, plus the meltdowns so the improvement for us has been fantastic. I will post below the videos from other people that we watched if anyone has any questions please send us a message! ❤️ you can also find out more information on our webpage http://www.nikkenwellbeing.co.uk/info/barber_mikeandmarie
This is a big thing that people just don’t understand, they take you declining an invite personally but when you do go they don’t understand and are judgemental and after all the effort its taken to just get there, its just not worth it, this is the experience of alot of Autism Families that I’ve spoke to and read about, especially from their own families.
If you have an autistic child/ren in your family please at least try and understand, do some research, ask questions, get involved, don’t judge the parents they need your support and so do the children!
If you are an autistic parent and you experience this walk away, you need all your energy and patience to watch your child 24/7, to be up in the night, to clean up after them, to deal with meal times, bedtimes, doing activities to help them to talk and communicate, making sure their sensory needs are met, making sure they don’t harm themselves, bathtimes, helping with transitions, dealing with nappy or toilet issues and all those other things that your now 5,6,7,8,9+ year old child still has to helped with, accept that you can’t change other people, you can’t forse them to understand they will only try if they want to. We can only make a better world by changing ourselves and teaching our children love, respect and understanding for one another.
At Spectrum & Me i found people that understand. There are many more support groups and things for children to do in our area that i never knew about before and there will be in yours, you may have to look but there will be places just like spectrum and me where you can go with your children and not be judged. If you are feeling isolated and that you don’t have any support please seek out these groups. Know that there are people who understand and there are people that care! ❤️
Thank you to those who have taken part so far and who have liked and shared the posts and videos this really helps more people see and the more people that see the more chance we have at raising awareness and understanding! ❤️
Emma spoke yesterday about sensory issues that alot of Autistic people have if you haven’t seen that video please do scroll down and watch and share it, we have just been learning about the different kind of sensory problems our two have so i will be going live and talking about that and what its like to have two children with Autism.
This is a good magazine to subscribe to from the National Autistic Society – Emma Lamb
We had a Guest Post ASD & ME which you can find by clicking the highlighted words.
Happy first day of April!! I can’t believe its here already! Tyler will be 5 at the end of the month which is crazy, my little boy is growing up! He has been saying colours this morning using a video on YouTube, he can say some shapes, colours, days of the week and months all by the songs we listen too. April is also Autism Awareness Month and tommorrow is World Autism Awareness Day! I hope you will continue to open your hearts and learn more about Autism this month. It may not affect you personally but it does affect us all when we go out into the world and how we teach our children to be understanding. We all need to do our part to make this world a better place! I hope you all have a fantastic day!
This is what we use at bedtime as well as the sleep system which I talked about earlier in the week. We use the serenity in the diffuser it works better for our kids than lavender, this lavender we use in their detox baths a couple of times a week with bicarbonate of soda, epsom salts and coconut oil. The rollerball on the end, they each have one, Sofias has lemongrass in for her Lymphoedema and Tyler has frankincense this can help prevent seizures, frankincense is called the king of oils so many great benifits! We put these on their feet.
Sofia is fast asleep, it took Tyler longer than her tonight, i think its worse when his sensory needs aren’t met just a little over an hour this evening which still isn’t bad like it used to be, plus he wanted to come into my bed for a bit and there is no sleep system there. Its a good job Sofia isn’t a light sleeper as he makes quite alot of noise and moves around hitting things but then he will just settle and go to sleep suddenly. He is now tucked up in his bed, he used to move around alot in his sleep which was a worry for us and we always had a guard up at the side of his bed but having the sleep system he doesn’t move around as much as he used to which is great because we had to take the rail away as he broke his leg on it having a meltdown which were regular things at bedtime, now its much more calm even when he is hyper its still much better. Now that the kids are asleep its dinnertime!! This is usual for us, we are having seasoned chicken mixed with peppers and onions with salad ☺ Goodnight 🌃 xxx
We love our boy and his cheeky sister even when they make bedtimes difficult ❤️💙
Temple Grandin, diagnosed with autism as a child, talks about how her mind works — sharing her ability to “think in pictures,” which helps her solve problems that neurotypical brains might miss. She makes the case that the world needs people on the autism spectrum: visual thinkers, pattern thinkers, verbal thinkers, and all kinds of smart geeky kids.
ASD Diagnosis and Whats Next